Sunday, May 9, 2010

Video about EEC syndrome

This video contains the most important issues persons are facing who "suffer" from the EEC syndrome (Ectrodactyly-ectodermal-dysplasia-cleft-Syndrome). The video is presented by the National Foundation for Ectodermal Dysplasias (NFED).

At the moment we don't see such severe problems like many of these kids in the video but it will take another year to fully recognize the different problems which he might face in the future:
  • Hair growth
  • missing teeth (at the moment it could be that two teeth are missing as they didn't grow yet but should have been there already)
  • growth (at the lower level for its age group)
The problems that we are facing is less his hands and fingers as most persons don't recognize them because you usually look in the face of a baby ;)
It will be more about finding the right doctors and get an appropriate treatment for all the "problems" that might come. And the time it will take to heal his wounds as he is an active boy who likes to crawl, walk and clap his hands.

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