Showing posts with label nine fingers. Show all posts
Showing posts with label nine fingers. Show all posts

Sunday, November 22, 2009

Visiting our relatives

Hello visitors and readers of All about babies and kids,

like you may know already we are already in holidays (join our Holiday-Contest to win prizes worth over 200$ + 25.000+ EC, good luck).

We are visiting the relatives in Penang and Kedah in Malaysia. It's our first visit together with our baby boy Timmy!!

My grandma and my aunties are longing to see Timmy since we've mailed them the pictures of our cute Timmy XD. Well, i do hope they don't focus too much on the Timmy's hands and nine fingers. I know they'll do and give us several advises :( But what ever, I don't know how they will react when they see him the first time as they don't know yet, how it really looks like.

I look forward visiting them and i hope there won't be too much critics on me as mother. You have to know, Chinese are sometimes very superstitious, especially in cases when your kid isn't developed "normal".
They might blame me on causing this appearance to Timmy, for example by using a scissor and cutting things during pregnancy (as if this would cut his finger in womb??) *LOL*
Frankly, i do hate to hear these kind of talking! But i know, it will happen... again like on the first day of his birth :( ARGH!!

However, i think it will still be a happy journey because nevertheless Timmy is really cute and yeah... clever ... XD

Ok, hopefully we can update the blog if there is an internet connection in my grandma's house.

Sunday, February 22, 2009

EEC-Syndrome: Our nine-finger son

Our cute son Tim Johannes
The EEC-Syndrome is a complex genetic disorder which can influence most of the body parts. Most common are the cleft lips/palate, there a gap on the upper lip/mouth will occur. Our son is NOT affected by cleft lips/palate!

The visible appearance for our son is the 'claw-like' fingers and the missing of fingers on one or both hands/feet.

Usually two fingers are combined and then it is followed by a gap and the other two or three fingers are a separate pair/triplet like you can see on the pictures from our son Tim Johannes.

This disorder of the skin/bones has no effects on his future development (physically, intellectually, mentally). It has mostly only to do with appearance disorder like we describe it below the picture.


Left hand with five fingers, the gap is between the middle and the pointing finger

Right hand with four fingers and gap between the ring finger and the pointing finger, the middle finger seems to be missing


Other features in connection with the EEC-Syndrome could be in the future:
  • missing or abnormal teeth
  • hearing loss
  • kidney problems
Usually gene or chromosome tests are made to see which kind of features could appear in the future because some of the features are already localized in the chromosomes.

At the moment we have to wait for the results of these tests. The doctors said we should get them at latest by end of April. We will keep you updated.

Do you have also a kid with some health problems?
Share your thoughts about it with us in the comments!

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